Healthcare Information, Programs, and Resources

Disability.gov

Provides individuals with disabilities with information on benefits; civil rights; education, work health care and housing options; accommodations; and community life: www.disability.gov.

Family Voices

Clearinghouse for information and education; works with policy makers to provide family perspective or health issues: www.FamilyVoices.org; 1-888-835-5669.

HealthCare.gov

A comprehensive site for all individuals who need help finding insurance options, learning ways to stay healthy, comparing different types of health care, and learning about the new health reform legislation; contains a section devoted to people with disabilities: www.HealthCare.gov.

Insure Kids Now

Puts families in direct contact with their own state’s children’s health insurance program: www.InsureKidsNow.gov; 1-877-543-7669.

Medicaid

Provides comprehensive medical care to those who meet eligibility requirements: http://www.cms.gov/home/medicaid.asp; 1-800-633-4227. 

Search for Your State’s Medicaid Program  

Search for Your State’s Medicaid Waiver Program (extends coverage for those who don’t qualify for Medicaid but face high medical costs; eligibility requirements apply)

Medicare

A government program available to children with certain disabilities and to dependent adult children whose parents are currently receiving Medicare: www.medicare.gov; 1-800-633-4227.

Social Security Administration

Administers Supplemental Security Income (SSI), Social Security Disability Insurance (SSDI), retirement and disability benefits for parents/caregivers, and Insure Kids Now health insurance programs: www.ssa.gov; 1-800-772-1213.

Special State-Chartered Insurance Plans (for wage earners)

The Health Insurance Portability and Accountability Act of 1996 (HIPAA) requires that all states implement policies guaranteeing access by small businesses and "eligible individuals" to health insurance of some kind. (“Eligible individuals” are those considered to be “uninsurable” under other insurance plans.) More than half the states have complied and all are in the process of instituting these special plans. Check with the U. S. Department of Health and Human Services for more information; www.dhhs.gov ; 1-877-696-6775.

 

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