IntroductionDear Parent,When your child is diagnosed with a disability, it can be overwhelming—emotionally and financially—on you, and perhaps your child and family as well. You realize, maybe suddenly, that you must change or modify plans for your child’s future. Even the most stable of families face financial challenges. Yet, in caring for your child with special needs, those challenges can make for urgent situations. Considering the reality of this can be very difficult. That is why the Parent Advocacy Coalition for Educational Rights (PACER) Center and the National Endowment for Financial Education® (NEFE®) collaborated on this publication. Through it you will find ways to create a sense of order in your life and maintain control over your finances as you care for your child and prepare him or her for adulthood. A Network of Parents and Organizations to Help YouThroughout this country exists a large network of parents of children with disabilities who stand ready to give you the benefit of their experiences in caring for their children. The Parent Technical Assistance Center Network (PTAC) is made up of 107 Parent Centers across the country to provide training, information, and assistance to families of children with all disabilities—ages birth to 26 years—and to the professionals who work with them. Funded by the U.S. Department of Education’s Office of Special Education Programs (OSEP), Parent Centers assist families in understanding their rights and responsibilities under the Individuals with Disabilities Education Act (IDEA). The majority of Parent Center staff members and board members are parents of children with disabilities. They are able to offer personal experiences, expertise, and empathy when working with families. Structure of the Parent Technical Assistance Center (PTAC) NetworkThe ALLIANCE National Parent Technical Assistance Center (NPTAC) is located at PACER Center, Minneapolis, MN. NPTAC collaborates with six Regional Parent Technical Assistance Centers (RPTACs) in providing 107 Parent Centers across the country with technical assistance, resources, and timely information to help you:
About This PublicationThis publication was created for middle-income parents of children under the age of 18 who have disabilities. It is a simple, straightforward resource to help you manage your money, and plan for your and your child’s financial future and overall well-being. The financial management techniques presented here can help you, not just in times of crisis, but for the rest of your life. There is an overwhelming amount of information available on caring for children with disabilities. Making your way through it all consumes too much of your precious time. So we designed this publication to accomplish several things:
Woven throughout this publication are possible answers to a nagging question you probably wonder about, “Who will care for my child after I’m gone?” The answers are displayed in suggested actions to take so you can, ultimately, do the four things that matter most:
There is a lot of information in this publication. Use the navigation buttons to pick topics you need immediate help with. We invite you to begin. |