When your child turns 18, they will start to see adult health care providers. For young adults with disabilities and special health care needs, this can be a challenging process. You may have long histories with many pediatric primary care and specialty doctors. 

Tips for a smooth transition

1. Discuss medical transition with your child’s health care providers
   When your child is 14-16 years old, start asking when their doctors will stop caring for young adult patients. Children’s clinics and hospitals have a cut-off age (usually 18 or 21) when patients can no longer be seen. It is possible some specialists will continue to see your child into adulthood. Some pediatric providers have staff to help coordinate the transition. You can also ask if they have any recommendations for adult providers who would be a good fit for your child.

2. Understand potential insurance changes
   Your child’s health care may be covered by a combination of private and public insurance programs. You will need to ask if recommended adult providers accept your child’s insurance. Your child’s eligibility for Medical Assistance (MA) may also change when they turn 18 because only their personal income will be counted. You can contact your child’s insurance program to help make sure your child stays covered during the transition to adult providers.

3. Organize medical records
   To ensure continuity of care, request copies of all your child’s medical records, including test results, therapy reports, and care plans, to share with new providers. Make sure you have a current medication list and summaries of their treatment history.

4. Prepare your young adult
   When your child becomes an adult, they will manage their own health care decisions. You can start preparing them early by teaching them about their disability and how to talk about their needs and strengths. As appropriate, you can support your child as they learn about their medications, schedule appointments, and plan for emergencies. If your child is not able to make medical decisions on their own or with informal support, you can consider legal options such as guardianship or health care power of attorney.