Siblings Speak, a new video series by the Health Information Center, will share the love and experiences of families who have someone with special health care needs.
Become a health care advocate for your child by following these guidelines.
Parents and Residents Together
Parents and Residents Together — PART — is a training program for pediatric residents at the University of Minnesota, conducted in collaboration with PACER and parents of children with special health care needs. Learn more about the program in these videos.
Preparing For Adulthood: Taking Charge of My Own Health Care
This 4-part series on transitioning from pediatric to adult health care was developed by PACER’s Youth Advisory Board. The series includes:
- Who Helps You Coordinate Your Health Care?
- What Can Medical Providers and Teachers Do To Help You Take Charge of Your Own Health Care?
- How Do You Prepare For A Medical Appointment?
- What Does Guardianship Mean To You?
The series is geared towards youth, parents, medical providers, and teachers to enhance conversations around youth taking charge of their own health care.
What Can Medical Providers and Teachers Do To Help You Take Charge of Your Own Health Care?
This video series was made possible in part through a subcontract from the Minnesota Department of Health under Grant Number D70MC27547 from the Health Resources and Services Administration (HRSA), an operating division of the U.S. Department of Health and Human Services.
Pediatric Resident Training Program
This video series looks at "Working with Medical Professionals: What Parents, Residents and Youth Would Like You to Know."
Empathy and Humor at its Finest
From Inside Edition, published 9/12/2018
Who knew you could learn how to dance in the hospital? A pediatric neurosurgery physician's assistant helps patients heal by dancing! Tony Adkins first broke out into a dance in an attempt to cheer up one of his patients. It's his way to protect the magic of childhood in the kids he sees. Tony says his unusual method is an integral part of treatment. Now he's dancing his way into the hearts of his patients, one at a time!
Consumer Directed Community Supports
All About CDCS (Consumer Directed Community Supports)
Learn steps to direct care for your child with special needs by using waiver funds to purchase services and goods specific to his or her needs. Learn how to ensure a successful CSP (Community Support Plan) by understanding the requirements of services covered, and individuals available to assist you in the process.
Covid-19 is changing the way healthcare is delivered as we know it. Perhaps it has helped expedite the utilization of delivery systems that will positively affect medically fragile children and those with various other disabilities. Time will tell.
Telemedicine started in the 1950s when hospital systems and university medical centers were looking for ways to reach specialists for better patient diagnosis and treatment, and to be able to collaborate with patient and doctors for better health outcomes, when distance was an issue.
The Midwest Genetics Network has created 4 videos for families by families to learn and be better prepared for telemedicine opportunities when they are available and to advocate for the opportunity when it is the best choice for your family.
Workshop Livestream Archive
Learn how to self-direct services available to individuals on Medical Assistance Waivers. Design your person-centered plan utilizing traditional/non-traditional supports, a support team, and a process for better health outcomes.
Access articles, recordings of the conversations and slides and responses to audience questions from a national symposium supported by the Lucile Packard Foundation for Children’s Health.